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A Canadian family arrives in Egypt on a world tour before their children lose their sight

  • Mahmoud Al-Najjar
  • BBC-Cairo

Edith and Sebastian, a Canadian couple, dreamed of a happy family and already had four children. The couple lived a happy life with their children until they discovered that three of the children had a rare disease that causes vision to gradually deteriorate until they lost it completely in their mid-thirties or forties.

When the eldest daughter, Mia, who is now 12 years old, was three years old, her mother noticed that she bumped into walls and furniture while moving around the house, especially at night.

After four years of tests and analyses, the mother discovered that Mia had retinitis pigmentosa, which is a rare genetic disease that gradually diminishes the vision of its owner until he loses it completely when he reaches the mid-thirties, and affects one person out of every 4 thousand people, according to American Academy of Ophthalmology.